At the conference, there was a cardiologist who was giving free echocardiograms. This cardiologist had also given a talk about the heart and having Turner Syndrome. I was very impressed. He even had his own staff with him to help with the echocardiograms over the conference. I have an abnormality of my heart where one of my valves is bicuspid, when in actuality it should be tricuspid. And I've never had any problem with it whatsoever. I've had several echocardiograms because of it, but it's only been to monitor it. Anyway, they said that unless there was anything pressing or needing attention, the doctor would get back to us at a later time with our results. On the last day of the conference, literally 30 minutes before I need to take the shuttle to the airport & still have breakfast, the people at the registration table told me the doctor wanted to see me. "Great", I thought. His concerns were that my aortic valve is enlarged. The echocardiogram was very unclear though, so he wanted me to see a cardiologist to follow-up, and get an MRI for a clearer picture. On of the concerns of having an enlarged aorta is that a tearing of on of the layers of muscles can occur. If it occurs, it can be life threatening. So, he referred me to someone at UCLA Medical Center. I've very thankful for this. The two doctors talked to each other. I don't have an appointment until next month, but I will have an MRI done before then.
Saturday, July 30, 2011
A Matter of the Aortic Valve
At the conference, there was a cardiologist who was giving free echocardiograms. This cardiologist had also given a talk about the heart and having Turner Syndrome. I was very impressed. He even had his own staff with him to help with the echocardiograms over the conference. I have an abnormality of my heart where one of my valves is bicuspid, when in actuality it should be tricuspid. And I've never had any problem with it whatsoever. I've had several echocardiograms because of it, but it's only been to monitor it. Anyway, they said that unless there was anything pressing or needing attention, the doctor would get back to us at a later time with our results. On the last day of the conference, literally 30 minutes before I need to take the shuttle to the airport & still have breakfast, the people at the registration table told me the doctor wanted to see me. "Great", I thought. His concerns were that my aortic valve is enlarged. The echocardiogram was very unclear though, so he wanted me to see a cardiologist to follow-up, and get an MRI for a clearer picture. On of the concerns of having an enlarged aorta is that a tearing of on of the layers of muscles can occur. If it occurs, it can be life threatening. So, he referred me to someone at UCLA Medical Center. I've very thankful for this. The two doctors talked to each other. I don't have an appointment until next month, but I will have an MRI done before then.
Monday, July 25, 2011
Two Opposing Forces Working At The Same Time
At the same time, I am focusing on the blessings, grace & mercy in my life. Because despite one good size thing happening in my life, there is certainly a heck of a lot of wonderful things going on too. (Which, ironically makes this all the more interesting for me to go through. It shows me God knows what I can handle, and that He is there.) I am thankful for the friends I call my close and dear. And my family. Also, I had an amazing time at the Turner Syndrome conference 2 weekends ago. Work is going well for me; and in the 10 months I've been at this job, I received my 2nd raise this week. I am even more sure that God has me right where he wants me, and I am on a path paved out by Him. I am even more passionate about nursing and graduate school. And it looks like I should be getting into some more pre-req's this Fall.
I know that this post is a bit scatter brained. I hope that it makes sense to you (my few readers out there) :)
I know that in darkness, light is so easy to shine through! And that God wants to use all of me to draw closer to Him, and to minister to others. So if you could be praying for me, as well as those I love I'd appreciate it. I would just love to be covered in prayer.
Sunday, July 24, 2011
To Post or Not To Post
Thursday, July 7, 2011
Gate 58A
Tuesday, June 28, 2011
I'm a total amateur...and yet again, a Switchfoot concert!
Wednesday, June 22, 2011
Stirring
Jester explained that he would take advantage of the Prince's predicament by imitating his voice & suggesting thoughts to his as though he was thinking them himself. With any luck, the disillusioned & confused Prince would voice & appropriate Jester's suggestions thinking they were his own. If all went well, he would hear himself say things so powerful that their mere sound would sear a distorted conviction into his psyche, warp his thinking, wound his emotions, and further undermine his already doubtful opinion about his Father, the King.
Monday, June 20, 2011
Orange County Skies Aren't As Blue As The Skies In Colorado

Thursday, June 16, 2011
The Vagabond kind of life
Saturday, May 14, 2011
It's been a while
I'm doing well in the pre-requisite class that I'm taking. (Can you say "A"?!...and also "raise my GPA"! Hollar!) It's a communications class, that is actually teaching me a lot. And I am really trying to learn from it and take the good stuff from it.
I've got this itch to learn the drums, and about 2 weeks ago I thought I was going to get a free drum set...it didn't work out, but I am still looking to get a drum set. I've also got this itch to take more pictures and use my camera more. I feel like I have a long way to go with it. I'm hoping to get some help from my talented photographer friends. Not that I want to become a professional photographer, but I love photography and want to get more skilled in it.
I have a lot to look forward to lately! My little brother is turning 14 in just a week and a half. I am going to be going to Colorado in 2 weeks. I'm going to the Turner Syndrome Society of America conference in July. So excited to see my TSS sistas and make some new friends there too! I also have a very cool story about Turner Syndrome. Upon a random conversation about health and such matters, my coworker says that she has a sister-in-law Turner Syndrome. And I said "so do I!". Needless to say, this sister-in-law only lives about 25-30 minutes away, and we are going to meet up very soon. How cool is that?
Well, I'm tired, and it's late. But perhaps tomorrow I will post something a little more substantial than a stream of consciousness type blog. Much love!
Monday, April 25, 2011
He Holds the Key
Saturday, April 16, 2011
So much excitement for one week! :)
Saturday, April 9, 2011
A post on good weekends and things that are pretty great!
- a search for: "Beyond ackward things to say"
- a search for: "Where does the phrase “round and round it goes” come from?
- a search for: "Rockharbor nannies"
- a search for: "Funny stream of consciousness"
- a search for: "the cuteness is killing me"
- also, my posted titled "I was like, baby, baby, baby, oh" is a popular one...I'd like to know who is searching for that. hehe
Thursday, April 7, 2011
Fired up!
Thursday, March 31, 2011
Hap, Hap, Happenings
Thursday, March 24, 2011
neglectful
Thursday, March 10, 2011
On "Springing Forward"
Thursday, March 3, 2011
Busy, busy...and tired
An exciting event that has also happened is that my roommate and good friend Reny has become a U.S. citizen! I'm so proud of her dedication and perseverance. She's been in the U.S. for 17 years. And she did all her paperwork on her own, without the help of any lawyers. She's already applied for her U.S. Passport!
- I sing sometimes. A little boy I babysit for asks me "is that Jesus?" whenever I do.
- The same little boy noticed that I was wearing a (faux) large pearl bracelet. He said "those are balls! But you can't roll them"
- I agreed to help a family by babysitting early in the morning before I went to work. I was there before the little boy woke up. When he got up, I went to get him out of his room. We talked for a minute or two and then I decided to open the blinds. It was 6:30am, and the sun was barely peeking through the night-time's end. You could tell as I was opening the blinds, it was still not entirely sunny out; but the little guy tells me to close his blinds "because it's too dark out" in the funniest tone (as if it were because it was too sunny). Haha. At the least, I get what he was trying to convey. And I agreed, it was very early and I don't think I was entirely awake either.
Saturday, February 26, 2011
Happy 20th Birthday Kor!
e day you were born. Cristina, Grandma and I made peanut butter cookies and visited you in the hospital. Cristina and I were worried the doctors would her (Cristina) in the hospital because she stepped on a nail and was limping. I remember you always being moms sidekick driving us to school, and you telling us it was time to leave. Then, you started at the same school as Cristina & me. You had cute little friends and were always smiling. You loved doing cheer and gymnastics. In high school you did well and stayed with cheer, and got into you first choice of college. I'm proud of what at hard worker you are, and what a strong person you are.Thoughts
Thursday, February 24, 2011
Razzle Dazzle
And you offered me my soul
In the name of all my weakness
In the name of rock ‘n roll
By His sickness I am healed
Cause they broke you I am whole
Oh the wonderful blood of Jesus
I went looking for the fig leaves
And you asked me what they’re for
I was building up a wall
And you offered me a door
I was hoping for silver spoons
But you handed me a sword
Oh the wonderful blood of Jesus
Maker is unmade
Love succumbs to hate
Life Himself is slain
Is death the only way?
Is death the only way?
I went looking for religion
Absolutely not a friend
I went looking for ways out
And you showed me the way in
I went looking for a ghost
And instead I found a man
Oh the wonderful blood of Jesus
Felt like I was at the end
Felt like giving up on life
I talked about your mother
And denied you once or twice
Yeah I plucked out your beard
Put a sword into your side
Oh the wonderful of Jesus
Life and love are torn
By the blades of earthly swords
We cut the final cord
This is mercy’s war
It’s mercy’s war
I was just chasing after safety
When my world went up in flames
I saw my defenses
Washed my ashes down the drain
I thought mercy was a stranger
But you called me out by name
Oh the wonderful blood of Jesus
Your wounds are gaping open
Couldn’t recognize you at first
And all I had to offer you
Was an insult or a curse
Blood dripped down like poison
On the nauseated earth
Oh the wonderful blood of Jesus
Oh the wonderful blood of Jesus
This is mercy’s war
This is mercy’s war
Oh the wonderful blood of Jesus